Crohn's disease and ulcerative colitis. If you get this diagnosis as an adult, that's all very sad. But there are also children's honor to hear that a chronic bowel disease now will affect their lives. Erasmus MC - Sophia Children's Hospital has enriched the Netherlands with a new charity: Crocokids. The idea is to make parents and children with ulcerative colitis or Crohn have to bring together, to promote scientific research and increase understanding.
Crohn's disease and ulcerative colitis. For an adult this diagnosis is very sad. But there are also children who are told that Crohn's disease or ulcerative colitis henceforth will affect their lives. And that's more difficult. Thanks hospitals that a 'good cause' start, there is when it comes to young patients who are children, happy to report regularly something new. So there is now 'Crocokids', with the appropriate and eponymous website. In the hope that Crocokids a household in the Netherlands and now and can be done in the future for young patients, it is Erasmus MC - Sophia Children launched this initiative. The goal is a better understanding and thus more effective treatment of children with Crohn's disease and ulcerative colitis. But also bringing people together and growing understanding.
One of the main purposes of Crocokids is raising funds - money so - for research into Crohn's disease and ulcerative colitis. But under the heading Crocokids organizes Erasmus MC-Sophia Children's Hospital also events and activities for children and their parents. The purpose of Crocokids is that there is more money for much needed scientific studies within the Erasmus MC - Sophia Children's Hospital, focusing on the causes, treatment, prevention, control and cure of these diseases. Additionally Crocokids is committed to provide better information to those who are in the immediate vicinity of these children. Eg teachers and classmates.
Erasmus MC is part of the Dutch Federation of University Medical Centers. The NFU is an alliance of the eight university medical centers in the Netherlands and has the overall aim to promote the common interests of the UMC. Other university medical centers that are part of the NFU are AMC, azM, LUMC, UMCG, UMC St Radboud, UMC Utrecht and VUmc. In total 60,000 employees are connected to the eight university medical centers.
It is estimated that every year in the Netherlands, approximately 250 children with Crohn's or colitis. What does it mean to be diagnosed with one of these bowel diseases? In ulcerative colitis involves inflammation of the colon. If you have Crohn's disease, the entire digestive tract can be affected by the disease. Who has one of these conditions will have to deal with recurrent unpredictable outbreaks of the disease, which are very painful. Unfortunately, it appears that people with these bowel diseases experience a poorer quality of life. In more severe cases, the condition can lead to various complications. These include bleeding, anemia, intestinal strictures, damage to the intestine, and in more extreme cases, the occurrence of colon cancer or complications arising from the need to use of lifelong medication. Timely detection and treatment can help prevent a lot of misery. But more is needed to understand and bring it closer to healing illness.
Dr. Lissy Knight and dr. Hankje Escher are both pediatrician specializing in stomach, intestine and liver diseases. Thanks to them, there is the initiative of Crocokids come. In their work they also treat every day children suffering from the severe effects of Crohn's disease or ulcerative colitis. Knight ?? Investigation into cause, treatment and cure provides a better understanding of the disease. There is little money available for this type of research, which is why we have started looking for alternative sources. Crocokids going to help us in the future to do more research. ??
On all information available about this charity. Crocokids is also active on Facebook, Twitter and Hyves. Crocokids works with the Foundation Friends of Sophia.